Web Survey Bibliography
The use of the Internet for searching and sharing health information and for health care interactions may have a great potential for families of children affected with rare diseases. We conducted an online survey among Italian families of patients with rare diseases with the objective to describe their Internet user profile, and to explore how Internet use affects their health decisions.
All members of UNIAMIO FIMR, a federation of associations of patients with rare diseases, were invited via mail to participate in an online questionnaire including questions on socio-demographic and clinical information, Internet use with a specific focus on health, and impact of web information on health behaviors. Logistic regression models were used to explore the effect of socio-demographic variables and Internet user profile on dependent variables representing the impact of web information on health behaviors. Multiple imputation by chained equations was applied.
Italian parents of patients with rare diseases are active Internet users, engaged in information search and in online communities.
Physicians, health care facilities and health agencies have a great opportunity to engage in online interactions for empowering families of patients of children affected with rare diseases.
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Web survey bibliography (189)
- Displaying Videos in Web Surveys: Implications for Complete Viewing and Survey Responses; 2017; Mendelson, J.; Lee Gibson, J.; Romano Bergstrom, J. C.
- Answering Without Reading: IMCs and Strong Satisficing in Online Surveys; 2017; Anduiza, E.; Galais, C.
- Lessons from recruitment to an internet based survey for Degenerative Cervical Myelopathy: merits of...; 2017; Davies, B.; Kotter, M. R.
- Achieving Strong Privacy in Online Survey; 2017; Zhou, Yo.; Zhou, Yi.; Chen, S.; Wu, S. S.
- Usability Testing for Survey Research; 2017; Geisen, E.; Romano Bergstrom, J. C.
- Millennials and emojis in Spain and Mexico.; 2017; Bosch Jover, O.; Revilla, M.
- Humanizing Cues in Internet Surveys: Investigating Respondent Cognitive Processes; 2017; Jablonski, W.; Grzeszkiewicz-Radulska, K.; Krzewinska, A.
- Web Health Monitoring Survey: A New Approach to Enhance the Effectiveness of Telemedicine Systems; 2017; Romano, M. F.; Sardella, M. V.; Alboni, F.
- Device and Internet Use among Spanish-dominant Hispanics: Implications for Web Survey Design and Testing...; 2017; Trejo, Y. A. G.; Schoua-Glusberg, A.
- Utjecaj vizualne orientacije skale za odgovaranje i broja stranica web-upitnika na rezultate ispitivanja...; 2017; Malikovic, M.; Svegar, D.; Somodzi, S.
- How to Design a Web Survey Using Spring Boot With MYSQL: a Romanien Network Case Study; 2017; Bucea-Manea-Tonis, Ro.; Bucea-Manea-Tonis, Ra.
- Effects of Mobile versus PC Web on Survey Response Quality: a Crossover Experiment in a Probability...; 2017; Antoun, C.; Couper, M. P.; G. G.Conrad, F. G.
- Dynamic Question Ordering in Online Surveys; 2016; Early, K.; Mankoff, J.; Fienberg, S. E.
- Mobile-only web survey respondents; 2016; Lugtig, P. J.; Toepoel, V.; Amin, A.
- Development and Pilot Test of a Mobile Application for Field Data Collection; 2016; Chiappetta, L.; Kerr, M. M.
- A Feasibility Study of Recruiting and Maintaining a Web Panel of People with Disabilities; 2016; Chandler, J.
- Inferences from Internet Panel Studies and Comparisons with Probability Samples; 2016; Lachan, R.; Boyle, J.; Harding, R.
- FocusVision 2015 Annual MR Technology Report; 2016; Macer, T., Wilson, S.
- Effects of Personalization and Invitation Email Length on Web-Based Survey Response Rates; 2016; Trespalacios, J. H.; Perkins, R. A.
- Who Are the Internet Users, Mobile Internet Users, and Mobile-Mostly Internet Users?: Demographic Differences...; 2015; Antoun, C.
- App vs. Web for Surveys of Smartphone Users: Experimenting with mobile apps for signal-contingent experience...; 2015; McGeeney, K.; Keeter, S.; Igielnik, R.; Smith, A.; Rainie, L.
- Mode System Effects in an Online Panel Study: Comparing a Probability-based Online Panel with two Face...; 2015; Struminskaya, B.; De Leeuw, E. D.; Kaczmirek, L.
- Recruiting Respondents for a Mobile Phone Panel: The Impact of Recruitment Question Wording on Cooperation...; 2015; Busse, B.; Fuchs, M.
- Evaluating Visual Design Elements for Data Collection and Panelist Engagement; 2015; Christian, L. M.; Harm, D.; Langer Tesfaye, C.; Wells, T.
- Predictors of inconsistent responding in web surveys; 2015; Akbulut, Y.
- Does Opinion Leadership Increase the Followers on Twitter; 2015; Hwang, Y.
- When it comes to mobile respondent experience and data quality, survey design matters; 2014; Mitchell, N.
- The Changing Landscape of Technology and its Effect on Online Survey Data Collection; 2014; Mitchell, N.
- The need of and the demand for completing surveys on mobile devices; 2014; Toninelli, D., Revilla, M., Ochoa, C.
- The Effectiveness of Mailed Invitations for Web Surveys and the Representativeness of Mixed-Mode versus...; 2014; Bandilla, W., Couper, M. P., Kaczmirek, L.
- Gender Differences in Internet Addiction Associated with Psychological Health Indicators Among Adolescents...; 2014; Ha, Y.-M., Hwang, W. J.
- Use of a Google Map Tool Embedded in an Internet Survey Instrument: Is it a Valid and Reliable Alternative...; 2014; Dasgupta, S., Vaughan, A. S., Kramer, M. R., Sanchez, T. H., Sullivan, P. S.
- Does Self-Selection Affect Samples' Representativeness in Online Surveys? An Investigation in Online...; 2014; Khazaal, Y., van Singer, M., Chatton, A., Achab, S., Zullino, D., Rothen, S., Khan, R., Billieux, J.,...
- Differences in intrapersonal and interactional empowerment between lurkers and posters in health-related...; 2014; Petrovcic, A., Petric, G.
- Web-based Emergency Department Patient Satisfaction Surveys May Introduce Potential for Bias; 2014; Broadwater-Hollifield, C., Fair, J., Podolsky, S., et al.
- Validating respondents' identity in online samples; 2014; Baker, R., Miller, C., Kachhi-Jiwani, D., Lange, K., Wilding-Brown, L., Tucker, J.
- Which fieldwork method for what target group? How to improve response rate and data quality; 2014; Wulfert, T., Woppmann, A.
- Social desirability is the same in offline, online, and paper surveys: A meta-analysis; 2014; Dodou, D., de Winter J. C. F.
- Clicking vs. Dragging: Different Uses of the Mouse and Their Implications for Online Surveys; 2014; Sikkel, D., Steenbergen, R., Gras, S.
- Online Surveys as a Management Tool for Monitoring Multicultual Virtual Team Processes; 2014; Scovotti, C.
- Ideal participants in online market research: Lessons from closed communities; 2013; Heinze, A., Ferneley, E., Child, P.
- The internet user profile of Italian families of patients with rare diseases: a web survey; 2013; Tozzi, A. E., Mingarelli, R., Agricola, E., Gonfiantini, M., Pandolfi, E., Carloni, E., Gesualdo, F.,...
- Internet health information seeking is a team sport: Analysis of the Pew Internet Survey; 2013; Sadasivam, R. S., Kinney, R. L., Lemon, S. C., Shimada, S. L., Allison, J. J., Houston, T. K.
- Advantages of a global multimodal print & digital readership survey; 2013; Cour, N., Saint-Joanis, G.
- Australia: building a 21st century readership survey; 2013; Green, A., White, H.
- Video Content in Web Surveys: Effects on Selection Bias and Validity; 2013; Shapiro-Luft, D., Cappella, J.
- When to and When Not to Conduct a Web Survey; 2013; Barna, A.
- Relative Mode Effects on Data Quality in Mixed-Mode Surveys by an Instrumental Variable; 2013; Vannieuwenhuyze, J. T. A., Revilla, M.
- Educational use of smart phone technology: A survey of mobile phone application use by undergraduate...; 2013; Bomhold, C. R.
- Customer satisfaction in Web 2.0 and information technology development; 2013; Sharma, G., Baoku, L.